Care orgs on the chopping block
Groups for people wih disabilities facing massive cuts amid pandemic
BY BEN VERDE
Agencies that provide specialized
care for people with developmental
disabilities are facing
a round of unprecedented
Medicaid cuts, which care providers
say will lead to hundreds
of layoffs.
Care Coordination Organizations,
which help manage
things like healthcare, housing,
food, and legal assistance
for people with developmental
and intellectual disabilities,
face a 16 percent reduction from
the state’s Offi ce of People with
Developmental Disabilities —
which advocates say will total
up to $75 million in lost funding
statewide each year.
Care providers say the cuts,
which stem from coronavirusrelated
budget shortfalls and
are set to go into effect on July 1,
may not have an impact on the
number of people they serve —
but they will negatively impact
the quality of care they offer.
“The issue is the impact on
the quality of the service,” said
James Moran, CEO of Care Design
NY, which services a little
16 COURIER LIFE, JULY 3-9, 2020
over 10,000 people in Brooklyn
and 108,000 people across
New York state. “It’s no different
than thinking about a hospital
taking a smaller kind of
cut. They’re not going to stop
serving people that walk in
the door…it’s the impact of the
quality of the service.”
And the quality of the care
is no small matter to the families
of those who receive it, said
one parent.
“Care Design doesn’t just
care for, they care about,” said
East Flatbush parent Geri
Turner Bright, whose 22-yearold
son Robert has been with
the program since its inception
two years ago. “They have a
general mission, but then it becomes
individualized.”
Those enrolled in the program
— the majority of whom
live at home with family instead
of in a group home setting
— are assigned a care manager,
who normally help to provide
care to roughly 30 participants
each.
For the Bright family, that
has meant having their care
manager Debra Emmanuel-
Edwards help enroll Robert in
Medicaid, and help them organize
their two-family home
so that Robert could live with
some independence in the spare
apartment.
The cuts come after the
state’s arrangement with the
federal government — in which
the feds covered 90 percent of
Medicaid costs and the state
covered only 10 percent —
comes to an end after two years
from the program’s inception.
As of July 1, the federal government
will require the state to
pay 50 percent of the Medicaid
bill when it comes to care coordination
organizations.
The Offi ce of People with
Developmental Disabilities defended
the cuts and claimed
they would result in no changes
to the services families receive.
The 16 percent cut is just the
latest in a long series of slashes
to services that help New Yorkers
with developmental and intellectual
disabilities over the
past decade, which have done
the most damage to the group
home system. The budget blows
also come as direct service providers,
like those at Care Coordination
Organizations, fi nd
themselves on the front lines
of the novel coronavirus pandemic.
Moran says it hints at a
greater attitude within Albany
that people with disabilities are
an expensive population to care
for, putting them fi rst in line for
the chopping block.
“More and more with the
fi scal pressures this is seen as a
high-cost population,” he said.
“Here’s a program you started
less than two years ago and
you’re already planning to reduce
funding even though it’s
still in the stage it’s in — it’s not
very thought through.”
Robert Howard Bright III, a member of Care Design NY. Care Design NY